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7 Health Matrix 97 (1997)
Breast Cancer, the Genetic "Quick Fix," and the Jewish Community: Ethical, Legal and Social Challenges

handle is hein.journals/hmax7 and id is 103 raw text is: BREAST CANCER, THE GENETIC
QUICK FIX, AND THE JEWISH
COMMUNITY
ETHICAL, LEGAL, AND SOCIAL CHALLENGES
Karen H. Rothenberg, J.D., M.P.A.*
TABLE OF CONTENTS
I.   INTRODUCTION            ......................... 98
H. GENETIC TESTING IN CONTEXT:
EMERGING THEMES               ....................                102
A. Genetic Myopia, the Genetic Quick-Fix, and
the Genetic Underclass        .................             102
B.    Genetic Accountability and Genetic Identity...              104
III. ETHICAL AND LEGAL IMPLICATIONS OF
INFORMED        CONSENT         ...................               105
IV. GENETIC INFORMATION AND
HEALTH      INSURANCE           ...................               107
V. GENETIC INFORMATION AND THE
WORKPLACE ........................... 113
VI. PRIVACY AND CONFIDENTIALITY OF
t Marjorie Cook Professor of Law and Director, Law and Health Care Program,
University of Maryland School of Law; B.A., Princeton University, 1973; M.P.A., Woodrow
Wilson School of Public and International Affairs, Princeton University, 1974; J.D., University of
Virginia, 1979. This Article evolved from the author's presentation at the Workshop on Inherited
Breast Cancer in Jewish Women: Ethical, Legal, and Social Implications, Case Western Reserve
University, April 26, 1996. In addition, parts of the Article are adapted from Genetic Information
and Health Insurance: State Legislative Approaches, J. LAW, MED. & ETHics 312 (1995) and
Predictive Genetic Testing for Cancer: Ethical, Legal, Social and Public Policy Challenges, in
ACCOMPLISHMENTS IN CANCER RESEARCH 1995, at 209 (General Motors Corp. ed., 1996). The
author wishes to thank her colleagues at the National Cancer Institute and the National Center for
Human Genome Research, National Institutes of Health, for their expertise and resources, the
participants at the Workshop for the insights and questions, and especially Barbara Fuller, J.D. for
her outstanding contribution to this Article.