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                                                                  Order Code RS20934
                                                             Updated February 14, 2003



 CRS Report for Congress

               Received through the CRS Web



 A Brief Summary of the Medical Privacy Rule

                            Gina Marie Stevens
                            Legislative Attorney
                          American Law Division

Summary


       This report provides a brief overview of the modified medical privacy rule,
 Standards for the Privacy of Individually Identifiable Health Information(privacy
 rule) published on August 14, 2002 by the Department of Health and Human Services
 (HHS). Issuance of the modified privacy rule by the Bush Administration is the
 culmination of a decades long debate over access to medical records that has pitted
 privacy advocates and civil libertarians against employers and much of the health care
 industry. As required by the Health Insurance Portability and Accountability Act of
 1996 (HIPAA), privacy recommendations were made to Congress by HHS in 1997,
 and a privacy rule was issued by the Clinton Administration in December 2000. The
 privacy rule went into effect April 14, 2001, with compliance required by April 2003
 for most entities. The privacy regulation creates a new federal floor of privacy
 protections while leaving in place more protective state rules or practices. The rule
 establishes a set of basic consumer protections and a series of regulatory permissions for
 uses and disclosures of protected health information. S. 16, introduced in the 108th
 Congress by Senator Daschle, would reverse some modifications made to the rule.


     Background. In recent years, our society has come to rely increasingly on medical
information to perform basic functions and to make decisions about individuals.
However, a number of fundamental developments have threatened the confidentiality of
health-care information, and are the cause of a great deal of concern. The emergence of
third-party payment plans; the use of health-care information for non-health care
purposes; the growing involvement of government agencies in virtually all aspects of
health care; and the exponential increase in the use of computers and automated
information systems for health record information have combined to put substantial
pressure on traditional confidentiality protections. In addition, an increasing number of
parties involved in health care treatment, payment, and oversight have routine access to
personally identifiable health records. Greater utilization of health-care information
coupled with inadequate confidentiality protections has increased the potential for
unauthorized uses and disclosures of medical information. The disclosure of personally
identifiable health-care information can profoundly affect people's lives. It affects
decisions on whether they are hired or fired; whether they can secure business licenses,
and life insurance; whether they are permitted to drive cars; whether they are placed under


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